Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.

Tuesday, January 27, 2009

New Cycle starts

It has been a fun and eventful week. I will start with the fact that Nick's counts were great yesterday so he started his new cycle of medicine. He really took having to have the port accessed and the shot in the leg well. Some screaming and kicking but minor relative to other times. We had a follow up with Radiation and all seems positive, but really not much is to be understood about side effects yet.
Last week Nick went to school, went to his cousins house, got a visit from Mauri and Gene, and another from Auntie Lisa and Uncle Hector and finally went to Nana and Papa's house. Colby started Karate and although we were touch and go for a little while Coach Jill turned the tide and Colby ended up having a great time. We expect Nick to go to school again this week, but you never know. We are getting ready for the storm we call "Steroid Nick". It is a very challenging week when he is on the steroids, but what are we to do. Karen and I are gaining a better understanding of how it affects Nick emotionally. We are learning a little patience can go a long way although sometimes we feel like running away. Karen has really been "Super Mom" lately. She is trying to plan us a trip to Camp Sunshine in Sebago Lake Maine. We had never heard of this before Donna at Clinic gave me the pamphlet. This of course required a long list of things to be done and of course adding to everything else, Karen somehow gets it done. It is hard to feel as though you are a good enough contributor when Karen is on your team!! She is our All Star and god knows what we would do with out her. I know I am kissing butt!! It is the truth. Hopefully this cycle will go as well as the last. Your prayers have trully been felt by all of us. Talk to you all soon....
The Shannon's