Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.

Wednesday, May 19, 2010

Just Thinking Out Loud

There are just some days that my mind drifts to my family and everything we have been through. The emotional roller coaster, along with the stress and watching your child day to day can catch up to you at some point. I think Greg and I feel that way at times. We understand there are many families out there not as fortunate as us to have close family, friends, donations and jobs to take care of Nick however we can. I am thinking today that Nick has not had chemo in his body for over a week now, nothing. It feels okay to take a break but also scary that his body does not have that poison in him to keep any leukemic cells from popping out. (for lack of better terms).
Nick is having a great week. He is on his 2nd day at Prospect Hill (daycare) and as much as I miss him being home, I am able to focus on work a little more. The daycare did call yesterday because Nick wanted to say hello. I really appreciate everyone there and working with Nick however they can to make him happy. He was excited to go back today after school. Socially I believe Nick is fine but how can you blame a kid that goes from clinic, to hospital stay, to home, to school and then daycare all the time to not be a little cranky about it. I guess that I just needed to get some feelings out today. Greg & I will be going to dinner next week with Parents from the clinic. It is a 'time out' event from the Tomorrow Fund for the parents. Nana offered to help us out and babysit, which will be nice to talk with some people who 'get it'.

Monday, May 17, 2010

Clinic Day

The weekend turned out to be great. Nick came home around 5pm Friday night. I gave tubs to Colby & Tom before Nick arrived and warned the boys it was going to be family night and we were staying inside. Greg & I felt Nick really needed one more night trying to stay germ 'free'. Nick agreed only if I let him play outside on Sat. and so that day Nick enjoyed hanging out with our neighbors. The Love family came over Sat. night for dinner and more playtime. Sunday, Nick headed over to Michael's and swimming. It was great to hear he finally put his DS down and got some exercise in.
Today we are at clinic. Nick just fell asleep and he is receiving the Pentimidine and IVIG. They pre-treat his IVIG with Tylenol and Benadryl and he is also on Zofran (anti-nauseau). It is amazing how much medicine, chemo and pre-treats he receives in one day. He is scheduled for Methotrexate (chemo) if his ANC is high enough.

Counts just came back:
WBC: 2.5
RBC: 8.8
APC: 1,200
ANC: around 400

He is still considered 'neutropenic' so they are holding his chemo today. We will just start another cycle next week. In this phase of Nick's treatment we do not make up any week he misses chemo, we just move on. Karen