Update:

Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.

Thursday, December 3, 2009

Another little bug going around

Nick left for school yesterday feeling great. I ended up receiving a phone call from daycare that he had thrown up and had an upset stomach. I picked him and he felt warm, but not really hot. We waited until about 9pm last night and then decided to take him to the ER. We are not on schedule these days. All of our thermometers were broken and the one I ran out to buy last night did not work great. We really could not tell if he was spiking or just hot from the blankets. After 5 hours in the ER, 3 attempts to access his port, we were sent home. They gave him an antibiotic during our stay, but his counts were good enough to let us go. We kept him home from school today once we found out this morning that Nick threw up again in the middle of the night. He said, he was glad he made it to the bathroom on his own, so he did not have to wake us. He had been napping on/off all day today. I am thinking he just caught the stomach bug, which is probably going around between school and daycare.
Colby is really excited for Christmas and was hoping to get a tree last night. We told him maybe tonight, if everyone feels up to it. It is so hard to get into the spirit when we keep having set backs and definitely some lack of sleep. Tom is teething and waking up a lot at night now. We will just make some adjustments and hope for a better weekend. Karen

PS. I might have lost some of my perspective and the point of our blog. It has been a long week with some unexpected turns. While the intentions is to share with everyone Nick's progress and how we are all doing, this blog is also meant for Nick and hopefully he will be able to read it and truly understand how much he went through during his treatment. I am also hoping for him to see how people are encouraging him along the journey. (not me). He is one who deserves all the credit.

Monday, November 30, 2009

Nick at clinic

Hello Everyone,
The Thanksgiving Holiday is over and how quickly it went by. It is never a dull moment in the Shannon household. I ended up getting sick most of the weekend. I am pretty sure it was the swine flu, due to the symptoms I had, but I can not confirm this. We are fortunate Nick and the boys were able to receive their first shot of H1N1 and I am even thinking Nick could of had a mild form of this virus last week and past it onto me. We will never know but it's definitely frustrating trying to spend a weekend with your family and enjoying time off and then get sick on top of it. I think I am through the worst and now Greg is sick today. I really hoping Tom & Colby do not catch it, but not sure how we stop that.
Nick is great and asked to have Papa (Boston) take him to clinic today. We were able to make that happen and Grammy came over to help out. His counts were good. His White blood cells still low, at 2.4, but all other counts are normal. The boys had no school today, so hopefully we will be back on track tomorrow with school and daycare. Not to much else going on. We are planning on getting the Christmas stuff out this week, but we will have to see how everyone is feeling. Take care, Karen
PS. We would love to hear from anyone who is reading this blog. There are just some days when I do not feel like writing, but keep thinking people would like to know what is going on. I try my best to keep everyone updated with family events but not really sure if it helps.