Hello,
We have scheduled for Nick's port removal on Monday, January 17th, 2011. Nick was excited to be picked up from school early today and we first went to clinic for blood counts. I forgot to make the appointment so the clinic was not expecting us but of course they took us right away. The Tomorrow Fund clinic is amazing. Nick lost 6 pounds in a month. We have definitely seen the difference in his face. We did not wait and the nurse accessed his port and took blood from it right away and we were on away for some lunch. We were scheduled to meet with the surgeon, Dr. Luks for a consult before the port removal but the our wait time ended up being over an hour long and we had to get home for Colby. The nurse was very helpful and able to go over the paper work with us and schedule our appt. We are still waiting on the final surgery time for Monday, but looking forward to it. Colby has asked us many times that he would like to be there for Nick when his port gets removed. We promised he could be part of the day. Greg and I believe the best news is that the kids are already out of school on Monday (President's Day), so zero make up work will have to done.
The other day Nick said to us: "I would rather go to clinic than school. Is that funny or what? Is it okay to feel this way." I believe Nick is actually missing his comfort zone of clinic and treatment. He talks about times when he was not feeling well or an 'I remember when' time on treatment. Greg & I just move past those moments and tell him how strong he is now.
We are so proud of Nick and everything he has gone through. Our family has grown so much stronger because of him and who we ALL are. Greg & I constantly talk about the past couple of years and how much we have a learned, the people we have have met, and best of all, to enjoy our time, whether is be days, weeks or year.
We are still looking forward to our many fans out there for comments for Nick. It might take a couple of months to put together what I have planned, so come and be a part of it. Thanks, Karen
