Update:

Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.

Tuesday, November 30, 2010

Disney




I know it took a long time to post and it is only a few of the pictures I have. Still working on downloading my camera to capture other parks.
It's been 10 days since I updated the blog and feels good to take a little break. Our Thanksgiving was nice, especially watching the Patriots win. The boys were very well behaved at Auntie Lisa's house and tired by the end of the day. The boys had the day off of school yesterday, so Colby came to clinic with us. Nick recieved his pentamine and his second flu/H1N1 shot, in his leg, of course. He refuses to have a shot in his arm. He remembers the shots he received in his leg and continues to think it 'hurts' less there. We tried to tell him, it probably hurts more, they use a longer needle to get deep in his muscle.
Reflections:
We are not completely there yet beleiving Nick's treatment has ended. Greg & I continually talk about his spinal coming up, his EKG on his heart and the port removal. As much as you feel comfortable going to clinic, they are like family to us, the past will always be with us. I saw a little boy yesterday, who recently had surgery on his brain and you could see the scared look in his eyes. We remember how scared Nick was on the first fews days in the hospital and then his visits to clinic. You feel so much for these families and wish you could do more. Greg & I have been talking about ways to give back and we can help,so we have made this our first New Year's resolution for 2011. (I know it should be losing weight for me, but that will come next). We continue to keep ourselves busy with activities filled on weekends and looking forward to house full of family/friends on Christmas.