Saturday, February 28, 2009
We were so happy to have the Shannon family tonight. Nick enjoyed watching everyone play. He took a warm bath (because the Love house is so cold). joey made sure that Nick enjoyed his stay. They all really had fun playing videos games and computer games. Thomas and Kendra had their own competitions - Kendra likes to take thomas's pacifier and knock him over - but she doesn't realize Thomas will be bigger than her some day. Nick really liked having the 'comotion' around him although he didn't play much. It's just important to know that Nick's included even when he does not have the energy to play. Mimi and Thomas kept tickling Nick which made him laugh and Kendra of course stole his drink. I think Nick liked getting out of the house, which is getting harder each day, and enjoyed just having fun with the kids around. Mommy and Daddy got some social time as well. To all a good night. The Love's.:)
Tuesday, February 24, 2009
We weathered the steroids for the past 5 days and today was the last day. He is a ball of energy all morning long, eats lots of salty food and yells at everyone and then he crashes for a couple of hours. We love that he is smiling more now and trying to tell his silly jokes to anyone who will listen. We think the shots are wearing his legs down because he definitely gets winded just walking up our stairs, but his mind still has lots of energy to burn. He actually gained weight this week, which is great because he was not eating for a little while... too much sleeping going on. You can see his legs getting skinnier but his stomach and face looking bigger. We are waiting for the weather to turn warmer, so we can get outside and play. Nick is always cold (I guess having no hair will do it to you) so we keep him warm with blankets inside. Nick had another shot yesterday... one more to mark off the calendar. He is getting used to the routine at clinic now, which makes us feel better too.