Hello All,
We had a great 3 day weekend for the 4th. Nick slowly bounced back to himself last week after the blood transfusion. Nick is back to his good spirits and his usual demands. I think we have spoiled him too much with McD's food and that is all he asks for now a days. We are working on changing his diet slightly and hoping he will have more energy in the coming weeks. Clinic was uneventful today, which is always great. Nick wanted Grammy to sit with him while they accessed his port. This is a great step towards more freedom for mom and dad. We are hoping Nick will let Grammy take him to clinic w/o us some days. His counts are very good:
WBC: 2.4
RBC: 10.8
PLTS: 140 - little low, but should go back up
APC: 1,300
We really enjoyed spending time with Thomas this weekend. He turned 1 on the 3rd. I was thinking about last year at this time and remember seeing fireworks from the hospital bed. Tom was in the room with me and I could see various towns light up the sky. Greg took the boys to the Franklin fireworks at the High School and they had a blast. At the time, Nick was feeling great and we did not have a clue how quickly our lives would slowly change by October. We tend to feel quilty from time to time by not being able to spend as much time with Tom. He is such a wonderful baby and so happy all the time. We wish him a Happy 1st Birthday and looking forward to an eventful year.... and more quality time with our little one.
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.