Good Week for Nick

Nick completed his round of steroids for this cycle. He was pretty good this week, only a few meltdowns and lots of french fries to curve his appetite. One morning he cried for an hour b/c he wanted ice cream for breakfast and I told him to eat something healthy first and then he can have ice cream. It is amazing to see him turn into a different child when the meltdowns occur. You know he will snap out of it and forget all about it but watching him can be sad. He ended up having a sleepover at Papa's (Boston) house with his cousin Megan. They both had a great time and I believe getting him away from our house is good for him.
I received a call yesterday from the Make A Wish Foundation and they were given 4 tickets to the Red Sox on Sunday and the Picnic in the Park charity event after the game and she offered it all to us. We are very excited and the weather should good. We have never been on the field before and we are even thinking of bringing Tom. You might be wondering why they called us and I have not actually blogged about Nick's Make A Wish Trip. For us, it is to far out to think about. We are making plans, have our plane flight and know were we are going but I try not to get to excited until the date gets closer. Of course it is Disney World and we are staying at Give Kids the World. Check it out. I have heard some many wonderful stories about this place. We are still humbled by the generosity people give to help kids. There are our family, friends and the many foundations that have given so much to our family. We thank all of you who continue to support us through our journey.

Great Vacation

We are back from vacation and had a great time. The weather was perfect and only rained one night. The week was very eventful and Camp Sunshine was filled with volunteers and loads of activities. At the beginning of the week we had NESN come and sponsor Camp Sunshine. Click on NESN for the quick show. Yes, you can see Greg & I walking around in the background. I was going to give an interview but decided the kayaks were calling instead. The boys had a great time. Nick was very tired in the beginning and ended up with a fever by Tuesday. I took him to the Portland ER where he received an antibiotic and we were able to go back to camp. Tom had blast when he was with us as a family. He had a tough time transitioning in the 'tot lot' but opened up by the end of the week. We believe the person who made the most of camp was Colby. He made friends and tackled some of his fears. He went on paddle boats, kayaks and bass pro fishing boat. In the evenings there were talent shows, masquerade parties and a dinner for the parents. Greg & I were able to relax and peek in our kids having fun.
I took Nick to clinic yesterday and everything was fine. I explained to the doctor how concerned we about these fevers that keep popping up. She said his counts were good and it was likely a virus so we are continuing the same dose as previous cycle. He received Vincristine, Methotrexate, 6MP and steroids.
I hope to post some pictures this week. Take Care. Karen