Update:

Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.

Tuesday, April 13, 2010

Hello,
Nothing to exciting to report this week. It is always a great week when there are no pills to give and Nick can eat whatever time he wants. This past weekend he was feeling great and back to himself again. Monday Greg took Nick to clinic in the afternoon. His counts were good, that's about all:

WBC: 3.3
RBC: 9.6 (normal: 10.6)
Plts: 127 (normal: 150-400)
APC: 1,800

We are not sure why his platelet count is low, we have not seen it this low in a long time. His APC is also on the low side considering he had his 6 days off at the end of the cycle. The doctor said it is okay and they will continue to watch his counts. He will receive another dose of the IVIG next week and his potamamine (monthly antibiotic) next week. He started his cycle yesterday and received: Vincristine, Methotrexate, 5 days of steroids and 14 days of 6MP. The doctors have decided to stretch his 5 days of steroids into 7 days and wean him off the medicine. They are concerned about the level of pain nick feels we he ends his dose, so we will try it this time around and see if Nick feels more comfortable. I am sure this will also keep Nick's appetite up for a longer period of time.
Colby's birthday is coming up in 2 weeks and the boys will no longer both be 6. I think Colby is ready to be 7 and of course have his Karate party. The boys will start school break next week and some much needed time off. Karen