Hello,
Nothing to exciting to report this week. It is always a great week when there are no pills to give and Nick can eat whatever time he wants. This past weekend he was feeling great and back to himself again. Monday Greg took Nick to clinic in the afternoon. His counts were good, that's about all:
WBC: 3.3
RBC: 9.6 (normal: 10.6)
Plts: 127 (normal: 150-400)
APC: 1,800
We are not sure why his platelet count is low, we have not seen it this low in a long time. His APC is also on the low side considering he had his 6 days off at the end of the cycle. The doctor said it is okay and they will continue to watch his counts. He will receive another dose of the IVIG next week and his potamamine (monthly antibiotic) next week. He started his cycle yesterday and received: Vincristine, Methotrexate, 5 days of steroids and 14 days of 6MP. The doctors have decided to stretch his 5 days of steroids into 7 days and wean him off the medicine. They are concerned about the level of pain nick feels we he ends his dose, so we will try it this time around and see if Nick feels more comfortable. I am sure this will also keep Nick's appetite up for a longer period of time.
Colby's birthday is coming up in 2 weeks and the boys will no longer both be 6. I think Colby is ready to be 7 and of course have his Karate party. The boys will start school break next week and some much needed time off. Karen
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.