Hello,
We have had a good week on steroids. (How often do you hear that?) Nick was happy most of the week and even went to school everyday. I do not believe he has made it to school for a full 5 days during the week of steroids since the beginning of school. He was feeling a little sad this morning but I reminded him that next week is school break and today they are having a Valentine's party, so he would have fun. He will not go back to clinic until Wed. of next week for Methotraxate. We are looking forward to the week off with the kids. I took a couple days off from work, so looking forward to hanging out as a family. Nothing to exciting going on here. We needed some quiet this week. Take care and thanks again for everyone's support and prayers.
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.
Friday, February 12, 2010
Tuesday, February 9, 2010
Thank You
I would like to say thank you to everyone for your support and prayers over the past couple of weeks. We had so much help last week, especially Grammy, helping with Tom, that is has not gone unnoticed. We are so lucky to have our family close by and there to help out when needed. Thank you to our friends for your support and understanding.
We are finally back to healthy kids again. Nick is much better and almost back to his funny self. Tom is definitely back and talking up a storm. He is very happy all the time and likes the remote controls the best. (Must take after dad). The weekend was great. The boys went to a Reptile Birthday party. I will post some pictures as soon as I can. They held a snake, skunk, scorpion, flying squirrel and many more animals. It was a fun night and really good to see Nick finally laugh again. On Sunday, Greg & Colby headed over to the Nasuti's house for the 'big game', Nick played with Michael all day and Tom stayed home. I bounced around from staying with Tom, to the Superbowl party and then Michael's house. It was a busy day for all the boys, which made for an early bed time. Monday, Nick went to clinic. I took him and brought Joey (his cousin) and Aunt Amy (my twin sister). Joey was very excited to see clinic and everything that goes on with Nick. He watched his port being accessed, the blood draw and then the medicine being administered. Although, I think they like playing the Wii the best.
Nick started his cycle again: Vincristine & Methotraxate through the port, 10 days of 6MP at night and 5 days on steroids. He was asking for a 'variety' of food this morning and of course it was none of the food I bought yesterday. After school, Nick and I have a 'date' at the grocery store. We hoping for a smoother week and getting through the steroids. Karen
We are finally back to healthy kids again. Nick is much better and almost back to his funny self. Tom is definitely back and talking up a storm. He is very happy all the time and likes the remote controls the best. (Must take after dad). The weekend was great. The boys went to a Reptile Birthday party. I will post some pictures as soon as I can. They held a snake, skunk, scorpion, flying squirrel and many more animals. It was a fun night and really good to see Nick finally laugh again. On Sunday, Greg & Colby headed over to the Nasuti's house for the 'big game', Nick played with Michael all day and Tom stayed home. I bounced around from staying with Tom, to the Superbowl party and then Michael's house. It was a busy day for all the boys, which made for an early bed time. Monday, Nick went to clinic. I took him and brought Joey (his cousin) and Aunt Amy (my twin sister). Joey was very excited to see clinic and everything that goes on with Nick. He watched his port being accessed, the blood draw and then the medicine being administered. Although, I think they like playing the Wii the best.
Nick started his cycle again: Vincristine & Methotraxate through the port, 10 days of 6MP at night and 5 days on steroids. He was asking for a 'variety' of food this morning and of course it was none of the food I bought yesterday. After school, Nick and I have a 'date' at the grocery store. We hoping for a smoother week and getting through the steroids. Karen
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