Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.

Saturday, November 29, 2008

Day 12 - The Shannon Family (consolidation 1)

Hi to everyone. We hope everyone had a wonderful Thanksgiving and lots of good food. As you have heard Nick made it home Thanksgiving morning. We had a very quiet day and just enjoyed being together. It is easy to forget how much family time means to us. When Nick is home we love every minute of it. Colby was really excited to see him home... he was feeling very sad that Nick was in the hospital so long. We go to Radiology on Tuesday for them to make Nick a mask and then start radiation the following week. He will endure 8 days of radiation, with spinals and chemo. We hope to have all this done before Christmas and crossing our fingers he will not break a fever during this next phase. Santa Claus came to our neighborhood yesterday and we got to take pictures. Nick was a little shy and did not want to tell Santa what he would like for Christmas... we'll try again at the mall sometime soon.

Thursday, November 27, 2008

Thanksgiving at HOME

Happy Thanksgiving everyone. Nick made it home this morning and was happy to be there. The Shannon's spent their Thanksgiving as a family at home enjoying all the wonderful food from friends and family. Hopefully Nick will make it through the weekend at home fever free and having fun. He starts a very tough portion of this treatment process on monday that will last a few weeks. He will be in the outpatient clinic almost everyday and will receive some radiation as well. We all need to keep him in our thoughts and prayers as this stage will be the most challenging he has encountered yet. We hope you are enjoying your holiday as a family as well.

Tuesday, November 25, 2008

Day 8 (Consolidation 1)

Just checking in with everyone. Nick got his temparature down today, but then it did up again. They finally think they know what is causing the fever (not an infiection) and are trying to get things right. He is such a tough a kid and does not complain about pain. As with any 4 year old he is trying to figure out what is going on. The Shannon family is hanging in there , visiting Nick everyday to keep him busy. Joey got to see his port put in today and thought it was 'cool'. Nick still just wants to be home, we all are hoping he will be home soon. He has definitely mastered Lego Star Wars and will be the Champion by the time he leaves the hospital - watch out gamers. We all wish you a Happy Thanksgiving - keep Nick in your thoughts.

Sunday, November 23, 2008

Day 6 - The Shannon Family (Consolidation 1)

We have had a tough couple of days. Nick spiked a fever Thursday night and has not kicked it yet. We believe he will be in the hospital for the rest of the week. His blood counts are starting to drop from the chemo treatments and thus weakening his immune system. He is receiving antibiotics to prevent bacterial infection. We are not sure the cause of the fever... could be from the chemo, a virus or infection. The doctors try to treat all possible causes. His spirits are getting low and he wants to go home. Luckily we are still trying to master Lego Star Wars on xbox and that keeps him going. I tell him we have to complete this before we go home. Just today he has complained of pain in throat... again another side effect. We try to comfort him and ease the pain through medication. He is done with chemo for the next 2 weeks, so our focus is to get through the fevers and have him home for a little while.
On a side note:
We would like to thank:
Dan Campbell (Interior/exterior custom builder)
Upton, MA 508-529-3144
Dan and his crew generously gave us their time to install hardwood floors in Nick's room and put in the storm door. The importance of keeping him germ free is intensifying daily. They look beautiful and I know Nick will be excited to see them when he gets home.