Monday, September 27, 2010
This week is our 3rd to last (cycle) treatment. I can not believe it and October is already here. Nick is great and really looking forward to going away. He started his steroids this week and is 1/7 so far sleeping in our bed... Hoping it will not last all week. Colby misses him when he is not sleeping in his bed, since they share a room now.
I have attached 2 pictures of Nick. The second one was taken in 5/09 at Hole in the Wall and first one was taken this past month at clinic. I think one of the hardest parts about treatment is the changes we see in Nick. I have a daycare picture of him on the day he was diagnosised and to see the different changes his body has gone through over the past 2 years is amazing. He gained a lot of weight due to the steroids, which contributed to some of his pain, he lost hair, grew it back and lost it again last Christmas. Now it is back again and he is starting to feel stronger in his legs. He is not running as fast as his friends but he tries. I truly believe no matter how many changes Nick goes through, it will never change his personality and who he is. He always gives us his great smile and keeps fighting.
Clinic was busy on Monday and just about all of my 'Monday group moms' where there. The kids had fun running around and playing together. His counts were good:
APC: 6,300 - high but the doctor thought he could be fighting a virus, which we believe he is. He has a little cough going right now, so we will keep a close eye on him for fevers.