This week has been a blessing to us. We have really enjoyed the old Nick again and seeing him smiling and playing with his brothers. He is feeling much better, but we understand we still have a long way to go. He received his shot on Tuesday and nurse checked his strength. His legs are very weak and the doctors are planning on lowering his next dose of the Vincristine and doxorubicin. We are going to try and taper him off the steroids, which is causing most of the pain in his legs. Many of you might wonder, what the steroids do. Steroids are very powerful in treating leukemia. They work with the Vincristine (chemo) to attack the red blood cells and marrow. Unfortunately, one of the side effects is pain and a lot of it in the legs. We are hoping that tapering him off might alleviate some of the pain and make him feel a little more comfortable.
Onto the goods news. We will be celebrating Nick's Birthday this weekend, as a family. Since we can not have a party for him at all the tumble places out there (too risky for germs and he is too weak to play), we have decided to take him to a hotel for the night. It will have an indoor pool for all of us to play in and just enjoy the night away. Greg is working on the place as I am writing. We started a tradition in our family and if it's your birthday then we (the rest of us) make breakfast in bed for you. Nick is looking forward to having breakfast in bed at the hotel. (And, mommy is excited she does not have to cook). The weather should be sunny and nice on Saturday, so we hope to walk around the city and eat some yummy food.
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.
2 comments:
Nick, Have a great time this weekend celebrating your birthday. FIVE years old! Kaitlyn just turned 5 too!!! We wish we could be there. The boys just wish they were staying in a hotel too. We have to wait until school gets out in June and we drive from NC to MA to see YOU to stay in a hotel.
Happy Birthday! And we love you,
Justin, Luke and Kaitlyn
Nicky, (and Colby, too)
I had so much fun spending the day with you! Nicky I cannot believe all the energy you had today. First off playing all morning with Michael, then resting for a few hours til Colby got home from school. It was amazing how you rebounded to play outside when Dann came to visit! looks like ridin on the jeeps and 4wheeler will be the way for you to get fresh air! Hope you all have a great time at the hotel,you deserve it!
love,
auntie michele
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