Tonight was meet the teacher night at Colby & Nick's school. We had Papa 'Boston' babysit the kids today and they were excited to see him, as always. Nick kept telling us he wanted to go with us but we told him it was an adult only night. I have met Nick's teacher prior to school, we covered his protocol and discussed Nick's health and some watch 'out' signs she needed to know. His room was great and I was sitting there the whole time excited to actually believe my son is now in Kindergarten. For one of the first times, there were NO tears in my eyes, just admiration for our son who will make new friends and hopefully enjoy his first year in school. On his table there was a cookie made for each parent with a note to us. It was so cute and we soon realized why Nick wanted to be there.... to make sure we did not eat the cookie. The teacher told us all the kids were worried that their parents would eat the cookie and not save some for them. Of course we saved the whole cookie for him and Colby to share. There were so many times when I felt fear of Nick going to school and is it the right decision right now. Of course Nick would never let us keep him in the 'bubble' we feel comfortable with. He gets up every morning looking forward to the bus and school. Colby's classroom was very busy and very active. I was amazed to see how many learning stations he has in one day. Greg and I were tired just listening to his day. He enjoys going to the bus stop with Nick and I think (secretly) being a big brother and telling Nick all about school.
We would like to thank Peter Walsh for sending a prayer request to the Shrine of St. Jude Thaddeus. We know there are MANY people out there praying for Nicholas and we truly appreciate all your thoughts in helping to heal our child. Next week Nick will receive another round of Vincristine, Methotraxate, 6MP and back on steroids. This will be the first time going to school on steroids and I have to pack a 'goody' bag for him. His appetite will be picking up.
Take Care, Karen
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.
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