Nick the Ambassador

Today was a big day for Nick and a very humbling experience for all of us. The boys woke up eager this morning to wear their new clothes, a tie, shirt and dress pants. They looked so handsome and of course tears came to my eyes. (That is pretty much how the day went, I think my eyes were never dry). We then headed to the RI State House for the big press conference. I was amazed to see how many kids showed up, I guess 'skipping' school today is okay. The Governor gave a speech and then the Child Life Speciallist started with announcing the kids who have lost their life, 2009 Ambassadors and then Lifetime Ambassadors. They brought the kids out of the room and had them enter through a side door when their name was called. Nick got up and left on his own and waited in line w/o his parents. Colby would check on him during the announcements of the kids and then come back and sit with us. When they announced Nick's name he walked (I really should say strutted) up to the Governor to shake hands and have his picture taken. We did not originally tell Nick he was going to receive a medal, so he was very excited when he received the medal and a certificate. After the ceremony, we headed to the state stairs for a group picture. Nick and Colby sat on the first step and the Governor sat right next to nick. We were able to visit with our Clinic friends and even see the ones who are now in remission. This day was for RI to honor The Tomorrow Fund Clinic and all they have done (financially and emotionally) for patients at the clinic.

After the morning, we headed over to clinic. I think today was our quickest visit EVER. We were at clinic less than an hour, that never happens and Nurse Paula was great. She even let me take pictures of Nick having his port accessed. I will post those pics on the next blog. We missed Tom very much today but we know he much more fun at Nancy's house than us trying to keep him quiet during the ceremony. We will have much to tell him as he gets older and hopefully this blog site will help him understand as well. Karen