Hello,
My friend Debbie sent this picture of Nick & Michael over to me. We took the boys to St. Rocco's in Franklin for the Italian Fair back in the summer. The boys had a great time. I can remember Nick getting really upset because he was not tall enough to the ride the big rides. I went on one of the big rides with Michael and Nick cried the whole time. It just reminds me how tough he is. He does not want anything to get in his way.
The Hole In the Wall Group sent us an invitation for a 'Great Escape Weekend' at the Heritage Hotel in CT, couples only. We signed up for this weekend awhile back but were never really convinced we would actually be going. We can not commit to anything in the long term, we plan our schedule week to week now. Well, here it is and it is time for us to get ready to go. This will be the first time we have left all 3 of our children in over 2 years. We are so excited to go, yet apprehensive too. The coordinator asked us to bring a picture of our children and a picture of our family. I immediately pulled out the picture of the 3 boys that was taken professionally after Christmas of last year. At the time, my plan was to have Tom's picture taken only, since I missed so much of him in 6 months. Nick was not suppose to leave the house because his counts were real low but he was so excited and wanted his picture taken. We were scared the whole time and tried to keep Nick away from anyone walking by the photo area. I can look back now and say I am so happy we captured this moment for Nick. He had lost just about all of his hair, he looks pale, but he is smiling. Greg & I laugh at each other because we are the worst people when it comes to taking pictures. We are lucky to remember to bring our camera and then pull it out of the bag. We will be bringing this picture with us and a picture of Greg & I at my High School prom, yes that is right, they are having a 'Prom Dinner Dance' on Sat. night.
We informed Nick and Colby of our big weekend and Colby said it was okay. Nick said we could go for 2 nights only and we had to promise we would be home by Sunday. I am sure I will be crying leaving the house and part of the time away from the kids. We know this good for Greg & I, but also hard to be away. There are many parents who are not able to go these events because their children are in the hospital battling cancer or really sick. We are so fortunate to have Nick back in good health mode and this opportunity for us. I believe the coordinator will probably have seminars and presentations and we are hoping to meet some parents who are going our same journey. I think most of all we would like to relax. Between us both working, Nick going to clinic, the boys in sports and Tom a very active child, there is not a lot of time to rest.
Nick will start another round of chemo & steroids on Monday. He was taken off of the 6mp pill last week when we went into the Hospital, so we have had a little break from everything. Unfortunately Nick is so conditioned about his medicine that he asked us for his pill last night before he went to bed. We explained that he gets a break for a week and he said to us: "did you ask the doctor? Is that okay?". He is a fighter and he believes his medicine will help cure him. We continue to pray it will.
Thank you to everyone who is helping out this weekend, a big family crew is coming together, we appreciate it. Take Care, Karen