Yesterday was Day 1 of steroids and it has started off very challenging. Nick was upset in the morning because his back pack had to much stuff in it and it was heavy. Greg told him he would help him get it on the bus. We had to pack his lunch, snow pants and shoes (for daycare). I guess Nick ended up getting on the bus pretty upset. I received a call from the nurse at 9:30am because Nick was complaining of a stomach ache. The nurse was able to find out exactly what was happening, Nick did not want to go to gym class. His legs feel tired after gym. I have mentioned to him that he needs to let the teacher know if his legs hurt, so he can rest. The nurse re-assured both of us that she would talk to the gym teacher and check up on Nick next week. It is part of our 504 plan, so we should be okay next time. Nick's teacher also emailed me in the afternoon letting me know that Nick had a rough day. He was on/off crying because of the whole back pack episode. He did better at night and only had 2 melt downs. This morning was much better and he was happy that we tied his snow pants to the outside of the back pack. I had to pack him up 2 bags of Doritos's, I think this will be the food of the week. I only bought one bag on Tuesday and it is already gone.
Tom is sick with the throw up bug. He has been home for two days. Not sure how our weekend will turn out and hoping we all do not get sick.
On a positive note, Colby was asked to move up to the 'big kids' Karate class. He is very excited and will start on Friday night. It will be good to have the kids separated for class, for now. Karen
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.
1 comment:
Good luck with the rest of the steroid days. Mollie loves Doritos when she's taking dex too.
Re: your previous post, we've found that Mollie is sleeping much better now that she shares a room with her little sister. They don't always go to sleep right away, but once they do, they are out for the night. I think she just likes the comfort of another person in the room :)
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