As I finished up my post from Monday, I realized that Nick was not feeling much better. I kept taking his temp. and it was ranging from100.8-102. Anything above 100.4 is considered a fever for his protocol. He said he was still in pain, his throat hurts, his eye was watering and he felt icky. I caught a cold and did not want to take him to clinic because of exposure to the other kids there. Greg was able to come home from work and take Nick. The nurses had his usual room ready for him, but once they saw him, he was put into a room, with a door. (The usual room is the ones with a curtain and mainly used for transfusion patients. Nick is comfortable there, so they let him have a room). His temp was 101.8 and he seems kinda out of it. We brought the morphine pills with us to make sure we had the right dose and we do, but he should not be so knocked out from it. His counts completely dropped but not to the neutropenic level.
WBC: yesterday 14, today 5.2
APC: yesterday 11,900, today 4,200
They did a strep test on him and we should know the results tomorrow. They are also pumping some fluids into him to make sure he is not dehydrated. He was drinking water all morning but does not have an appetite. I am not sure why the pain has not subsided yet and why this virus hit his system so hard. He was given an antibiotic drip and they want to see him tomorrow. We are going to try and hold off on the morphine and get back to the Tylenol w/codeine to see if that helps. Hoping the fever will break tonight. I will be taking him back to clinic tomorrow for a check up and see how his counts are. Karen
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.
2 comments:
Dear Nick .. healing thoughts are being sent your way during this "not feeling well" time.
Your resilience will never cease to amaze me ... and puts all of life in perspective.
I may be silent, but I am checkin' in on your blog everyday.
Big Hug
Andrea
Nicholas,
I hope you are feeling much better today. Your Auntie Eileen is watching you from heaven and she sends her love.
Karen and Greg our prayers are with the both of you as you take care of our "special" little boy. The other two are special also.
I really did feel positive on Monday at the clinic.
Love, Nana and Papa
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