Hi All,
Just a quick update for the weekend. Nick did so well on the steroids and his emotions. I know it is hard and definitely uncontrollable at times, but handled the week very well. On Friday night he fell asleep in our bed and woke up screaming in pain. His legs hurt, which is typical for him right after ending steroids. It took us almost 2 hours to get the pain under control. We gave him Tylenol w/codeine and morphine. We explained to Nick that as soon as he feels pain, we need to give him medicine. He said he was in pain early in the night but felt he could handle it then. By the time we tried to control it, he was in so much pain. No matter what we go through, it SUCKS watching your child scream out in pain, knowing there is not much you can do. You just wait, sit with him and hope it goes away quickly. It was pretty much that way all weekend. The pain came and went and he would begging for more pain medicine. We decided to stick with the Morphine since it is working best. He feels better today, but still not at 100%. He is getting a running nose and we hope it is not another virus he is catching. The kids have a week off of school, so hopefully we can fill it with some play dates this week and have Nick feeling better.
On a side note, my sister (Amy) and I had 10 inches of hair cut off and donated to Locks of Love. We have been growing our hair out for almost 2 years and it felt so good to finally be able to cut it. Little things we can give back during this battle helps us feel good. As we said in the hair place, it feels like 10 pounds is gone. (If only it were true). Karen
1 comment:
Nicholas,
I am so sorry that you are having a lot of pain in your legs. I wish I could share some of your pain to make it feel better for you. You are a special boy and Nana and Papa love you very much. Heres hoping you and Colby and Tom have a fun week at home. See you Friday. Love Nana and Papa Charlie
Post a Comment