Hi All,
We should be going home today. Nick is feeling great but his counts are not exactly where we would like to be. His WBC is now 1.9 (yesterday 1.8) and his ANC is 380. (should be 500 to be released) I am waiting for the Doctors to come in and give me the protocol for leaving. They know Nick is eager to go but we will have pre-cautions to. I am thinking just living in a 'bubble' for a day or two so he will have a full recovery. I am sure Nick will be sent home with some antibiotics to, but as long as we can go home, we can adjust. Nick is already trying to line up playdates and really misses his friends. This will be the hard part, small visits at a time. I'll post more later.
I forgot to mention that over a month ago we booked a ski trip through Colby's Karate class to Stratton Mtn. Colby is so excited to go and we never book events a head of time because of Nick. This time we took a chance. We were hoping Nick and I could go up for the night (tonight) and then ski on Saturday and then come home. Nana & Papa Charlie are taking Tom for his first over night sleepover. The goods news is that Greg & Colby will be leaving to go up to the mountain today. Colby is taking a ski lesson tomorrow and then go tubbing. Nick is bummed he can not go, but he will get extra attention at home, so hopefully it works out for both of them.
These are the times that upset Greg & I personally, we can not be together as a family, but we know Nick is fighting and as long as he continues, we will beat this.
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.
3 comments:
so glad to hear Nick is improving..we will cont to pray and keep you all in our hearts..love to all Patt
Hey There Shannon Fam!
Been prayin for ya! Had lunch with Michele yesterday and talked about Nick. So glad to hear he is doing better! I'm keepin my eyes on you Nicky so fight hard!
Sending you all lots of love and better weather!
Shari Smith
I was waiting for an update- I hope you're home by now!
Not being able to plan anything is so stressful! We have learned the hard way that trip insurance is worth it.
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