Just a quick update today. Yesterday, the boys, Joey and Megan went to Newport to set sail on a sailboat. The program 'sail away' was sponsored by Hasbro Children's Hospital. They all had a great time but were also scared as the sail boat sailed further out to sea. Aunt Amy and Tara (our wonderful sitter for the summer) accompanined the kids.

Click on this article. I can definitely relate to the entire piece. As we start to approach our date, there are still numerous questions that go through my mind. To think back over the past 2 years and see everything Nick has gone through and then wonder.... what will come next. There is always the looming words 'side effects' that come to my mind. We can not react to anything until we see it. Greg & I both believe we see some changes in Nick. The innocence was taken from him the day he was diagnosed and now he knows more at the age of 6 than most of us. He helps the nurses attach and unattach his tubes from his port and helps insert his blood into the tubes for the lab. The steroids really do a number on his attitude and feelings. We will continue our journey with the positive attitude and adjust how we see fit. Karen