Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.

Tuesday, May 10, 2011

Monthly Clinic Visit

Our house continues to be busy with baseball and enjoying the warm weather when we have those days. Those of us who live in New England now that summer has not hit and we are still having cold days. Nick has his monthly clinic visit yesterday. We were worried about his eyes and how red they were over the weekend. He complained all day Sunday about how much they bothered him. We decided to give him some Benadryl on Sunday night and they seemed to work for a while. Nurse Pat at clinic thinks it is just allergies and he is showing no other signs but a stuffy nose. He has never had allergies in the past but then again, he has been on so much steroids and antibiotics that we probably would not know. His counts were great, the highest we have seen:
WBC: 10.0
RBC: 12
Plts: 338
ANC: 3,200

My only concern at clinic was his constant bruising all over his body. He definitely bruises easily but the nurse did not show concern for that. I guess the bruises on his legs are normal and he has a few on his arms. I think we just forget how active and playful he is now that this is a boy enjoying himself. I also learned that Nick will now go to clinic every 6wks instead of every month. I was a bit surprised and still not sure if I like this 'plan', which is part of his protocol. He finishes his Bactrum in 2wks, which would be 6 months off treatment.... Still can not believe it at times.
Auntie Lisa and I took the boys to the Red Sox game on Friday night. We had a lot of fun. Colby was really into the game and Nick made sure I bought every food that came by us. He would tell me to get my hand up in the air. I mentioned to Nick that his first 2 times he was here, was steroid week and he was miserable. We stayed until the top of the 9th inning and they left, unfortunately the Red Sox were losing. The boys brought their gloves hoping to catch a foul ball. Thank you to my very dear friend for the tix and thinking of us..... the memories will last.
Greg and I would like to say thank you for everyone who participated/donated to The Tomorrow Fund Stroll. The stroll raised over $100,000 this year. That is the most they have ever raised and brought in over 3,000 'strollers' for the day. As the Shannon Family we can not say enough great things about what the Tomorrow Fund does to help out the families going through treatment. To say they care about people is an understatement and anyway we can help out, we try. Take care. Karen


auntie michele said...


Im really glad to read that things went well for you on Monday, and I'm especially happy to know that you don't have poison ivy!

I will see you at a baseball game real soon!

Auntie Michele

Smilen Champ said...

Hi Nicholas!
My name is Jenna and I came across your site. I am a huge Red Sox Fan! Go Sox Go! I am from BC. Canada! I was born with a rare life threatening disease.
U are a brave, courageous, strong, and determined, fighter.
U will be in my thoughts. U are an inspirational hero, champ, and warrior.