We were able to come home today..... on many restrictions. Let's back up a bit. It took the nurses about 1.5 hours to access Nick's port the other night. Partly due to Nick being stubborn and the ER trying their best. We ended up having a nurse from the 5th floor come down and access the port. Nick's fever broke before the next day (Sunday I think). He did receive a blood transfusion, which went great so he did not need the platelet transfusion. He was back to himself again in no time. They drew blood yesterday to see how his 'counts' (the everlasting work to see how everything is working) and they were still a little low, so we decided to wait until today. Today's counts were good, but the ANC (again another technical term to show if his body is susceptible to getting sick, put mildly), was very low. The doctor gave us the option of heading home and keeping him 'in a bubble' or staying one more night. I explained everything to Nick and he decided he wanted to go home and keep his port accessed... in case he has to go back to the ER at night again this week. We decided it was better to try and be home as a family as much as can and take the consequences when they come. Colby is always really excited when Nick is home and able to play with him. Thomas even gets happy and jumps around on his jumper. We will see what happens in the next couple of days and go from there. Nick was suppose to start his next 3 week chemo treatment but will probably be pushed off until Monday. He did receive his shot in the leg this week. (that does NOT effect his counts). He did good and cried like everyone should when it hurt.
We would to wish everyone a VERY HAPPY AND HEALTHY NEW YEAR. TO 2009! GOD BLESS YOU :) Greg, Karen, Colby, Nicholas & Thomas
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.
1 comment:
We were so sad to hear Nick had to spend more time in the hospital, especially this time of year. But also, we are so happy he is now home with his parents and brothers.
We pray for strength for Nick and your whole family all the time, through this awful road to recovery.
Love,
The Leonard Family
Post a Comment