Friday, May 22, 2009
A pretty normal week
Nick has completed another week of his shots. He has 6 left. We are telling him next week that we can count the number left on one hand. Nick had a lot of pain in the beginning of the week, but has steadily got better as the week has progressed. So much so, that he went to school yesterday. They played outside all morning as it was a nice day. Nick really pushed himself and was doing his best to keep up with the other kids. He really gets quite bloated and large after the steroids. You can see he is uncomfortable, but of course he just deals with it. We try and limit the amount of food intake during this time, but it is hard when he is tapping you on the forehead at 3 am asking for cheez-its. That is when you realize he has no control over these feelings. It is great when Nick comes off the steroids and starts becoming himself again. He and Colby really play well together when he is feeling good although he does take advantage of Colby's good nature. Tom is all over the place and the two older boys are starting to understand that he is a person and he wants to be involved. They don't necessarily want to involve him all the time, but both of them are great big brothers. We are hoping for a great holiday weekend and wish you all the best.