Update:

Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.

Friday, October 9, 2009

It is always an eventful week when Nick is on steroids. We just never know which way his mood swing will go. Tuesday he went to Prospect Hill and did great. The teachers said he was a little sad, but then played with his friends. On Wednesday he had his big play date with Michael. It has been a couple of weeks since the boys have played together and Debbie bravely took Nick for the day. I know Nick had fun playing at his house and then going to Michael's school to pick him up. (Michael's full day) Nick was so tired that night when he came home. It was funny because he walked in the door and told everyone to be quiet (we had auntie Michele and Uncle Norm over) and then fell asleep on the couch in about 5 minutes. Thursday was a rough day at school for Nick. The nurse ended calling (all the phone numbers we gave her) and eventually got a hold of Greg. He was feeling 'homesick', as he calls it and melancholy. After talking to Greg, Nick agreed to stay in school until dismissal and Greg picked him up. He was suppose to go to Prospect. They went to lunch together and then Nick slept in the afternoon. Friday at school proved to be the same thing. It is so hard because we are trying to figure out when he has had enough or if we should keep pushing and make him get through the day. It is only half day and we want him to enjoy the school day, not have a miserable time. He goes through a lot and we do the best we can at 'picking the battles for him'. The teacher is great and she gives him options to relax in the book corner or go to the nurse's office. We agreed to have him stick it out today and take the bus home. I think I will work with the social worker to find out ways to make him feel comfortable during steroid weeks at school. I'll have to find a book to read with some ideas.
Looking forward to the weekend and the party. Two more does of steroids and then a break for 2 weeks. I do not like watching Nick change and feel so sad at times but I know he will be back to himself in a couple of days. Take care.

1 comment:

Unknown said...

Hi Karen YOU are amazing to keep up with everything! Our thoughts and prayers are with you everyday! One of these days - we have to get Nick and Shaunee together!
Regards - Lori Fitzpatrick