Nick had clinic today. He started another round of chemo. Vincristine, Methotraxate and antibiotic through the port. He is back on steroids (5 days) and 6mp at night (14 days). Clinic was quiet this week, much better than last week. I think our busy weekend caught up with him and ended up taking a 3 hr nap today. He is still up right now and in good spirits. The doctors have increased the 6mp because his counts are still high. We were prepared for this and understand why this is necessary. The purpose of increasing the dose is to bring his counts down, which can be scary going into the flu season. There have been some kids out sick in his class and so far his body has handled everything okay. We will get ready for the steroid craze this week and hopefully he will not be in so much pain by the end. We always try to look for the signs if he is feeling pain but he is so tough that by the time we know, we are reacting to it. The boys will also start afternoon daycare (tues.,wed.,thrus) at Prospect Hill. Nick is in half day Kindergarten and tends to get bored when he is home and I am working. Our work schedules have been a little hectic and Nick feels very comfortable at Prospect. He will see his friends again and Colby will join him in the late afternoon. The teachers are wonderful and understand Nick's mood swings and help out however they can. It's a little stressful because we always worry about the germs, but again, Nick wants to play and have fun. We still have our family helping out on Mon. and Friday's, which is a huge help and we appreciate it.
This past weekend we decided to take the boys to a corn maze and apple picking. They had a blast. We were worried Nick would be tired during the corn maze and he made it through the maze for the first 20 minutes. We were almost done, finding 3 mailboxes with stamps and then he decided to take a break. Tom was in the back pack on Greg's shoulders and it was a good time to leave the maze and find the fry stand. Colby and I stayed in the maze and the last mailbox. It was good bonding time for Colby and I and he was getting worried we would not find it. He is so sensitive and was worried where Nick was that he almost gave up. We found the mailbox together and he was so proud of the accomplishment. After that we headed to the apple orchards and picked two bags of apples. I think they have eaten about 6 of them since Sunday.
We are looking forward to this weekend and the big party. We'll give more details later but let's say we were completely surprised and truly amazed of the generosity and effort that everyone has done. Take care. Karen
Nick is an amazing 6 year old fighting T-cell Acute Lymphoblastic Leukemia (ALL). He was diagnosed at 4 years old on Oct. 15, 2008 and here is the story of his courageous battle. This day changed our lives forever. Nick seemed very healthy at the time and the only signs we noticed were swollen lymph nodes on his neck. At first, we thought it could be a virus, but after 2 rounds of blood tests, the doctors confirmed our worst fear, cancer. This site is to show how strong our little boy is.
Update:
Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.
1 comment:
Ummmmm .... party ... cannot wait to hear more !
: )
Andrea
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