Update:

Nicholas finished treatment on 11/18/2010. He will continue to go for blood work for the next 3 years. He is still in remission.

Monday, December 21, 2009

The snow storm and clinic

Hi All,
We had a great weekend as a family and celebrated with friends. We went over the Love house on Friday night to give Grammy her presents before she drives down to NC to visit the Wykoff Family for the holidays (Karen's sister and family). Saturday night we celebrated at Al & Robyn Nasuti's house. It felt so great to relax, enjoy some adult beverages, good food and just let the kids play. We woke up Sunday to about a foot of snow. The kids played outside twice and enjoyed the hot coco by the fire after. Tom has his first experience of playing in the snow. He loved it, until he stuck his face right in the snow. I actually brought my camera outside and took pictures.
Today, Nick decided he would like Papa (Boston) to take him to clinic. It is hard to give Nick that little freedom of Greg or I not being there and asking the nurses about him and always checking up on everything that is going on at clinic. Papa does a great job and of course I send him with my questions and concerns. His counts were good:

WBC: 2.2
RBC: 9.8
Plts: 263
Neut. 27.7

We were originally scheduled to have Nick's next spinal (LP-lumbar puncture) on the 29th but the doctor moved the appt. to the 31st. I guess there are a few doctors taking some time off, so no one is available on the 29th to perform the LP. There are no issues with moving the date out a couple of days for Nick, it will be an adjustment for us. Nick will not start his next cycle (w/steroids & Vincristine) until the 31st. We will be moving clinic days to a Thursday for at least a little while. We will try to catch back up to a Monday clinic day over time. The good news for us is Nick will be able to enjoy his Christmas school break the whole time and not have those 'cranky' (steroids) in him.
As I mentioned before the Sturbridge Federated Youth Group is hosting a charity dance in honor of Nick and The Tomorrow Fund. We will be bringing the kids to the dance on Wed. night. We are looking forward to meeting Ryan and Sharie, who have worked very hard to put the whole event together. We will post pictures after the event. Take care, Karen

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